Diagnosed with Liver and Lung Mets |
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dmwolf 
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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 Posted: Mar 12 2013 at 11:52am |
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Snickers, you are the best. Thanks for giving us a little window into your life, and into the sweet connection you have with your onc. Of course he responds to you! How could he not, considering how charming and open-hearted you are. I wish you continuing great health and spirits into infinity (at least).
Love, Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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TriplePositiveGirl
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Joined: Oct 07 2010 Location: Los Angeles, CA Status: Offline Points: 667 |
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Posted: Mar 12 2013 at 12:01pm |
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Snickers,
Thanks for the positive affirmation today. You are so right! You seem to be doing really well with this chemo regimen. I am so glad this worked for you, and i hope you have many more years of NED ahead of you. Lisa
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Mar 12 2013 at 1:36pm |
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Snickers,
Just checking in and i am doing the happy dance for you this amazing news just made my day!!!! May you remain NED for ever!!!!
God Bless...
Denise
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Mar 12 2013 at 6:19pm |
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Snickers,
It sounds like you have a wonderful doctor/patient relationship with your oncologist. I felt the same way with my first onc and always had a list of questions at each visit. Now I always kept the list to no more than 10 questions, lol. She left on a sabbatical and I remember the last visit, we sat and just talked for about 15 or 20 minutes. We knew this would be the last time we'd see each other and she genuinely wanted to talk, not just about cancer, but life in general. I've come to learn this type of relationship may not be the norm, so cherish it when you find that genuine doctor who truly cares about you as a person. I hope Smitty had a good day at school having the kids read to him. I bet he's just worn out tonight! Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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turtle
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Joined: Feb 05 2012 Location: Durham, NC Status: Offline Points: 161 |
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Posted: Mar 12 2013 at 7:38pm |
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Snickers,
Wonderful to hear that your relationship with your onc is a close one, and even moreso that he has good news!! Your positive attitude and gracious spirit are infectious! I have an appt tomorrow with my new (hopefully) onc, Lisa Carey. As many on this site know, she is a TNBC expert, and I am lucky that I have the option of changing to her...with my new job, my Duke doctors are no longer in-network providers, so to be able to switch to another world-class institution in the same area is indeed a blessing...maybe a box of krispy kreme donuts is in order? |
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DX IDC TNBC 1/15/12 @ 46; MRI 2.4cm gr3 BRCA2+ 6174delT; LMX 1/31/12 2.5cm, pT2pNO(i)pMX, lymphovascular invasion present; 2/20/12 TAC X 6; 7/2/12 Rad X 25; 9/27/2012 2nd mastectomy & BSO surgery
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btstark2003
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Joined: Apr 24 2010 Location: St. Louis area Status: Offline Points: 426 |
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Posted: Mar 12 2013 at 7:54pm |
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Hi Turtle, I went to Lisa Carey for a third opinion when I had my second occurrence back In early 2010. I thought she was the bee's knees! The whole UNC Cancer Center was very impressive.l I hope you have as good an experience there as I did.
Beth |
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2008 Stg1 TNBC, LX, FEC+T, rads
2010 2.5cm tumor BRCA-, BMX,CMF 2011 LN mets, Gem/Carbo, surgery, rads 2012 lung mets, PI3Ki/taxo 2013 anti-PD-1 2014/15 Xeloda, IMMU-132, eribulin Aug 2015 Keytruda |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Mar 13 2013 at 9:31am |
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Dear Turtle,
I'll take a chocolate covered donut... YUM! I pray your new oncologist, Lisa Carey, will be a good fit.
We, here in North Carolina, are very lucky to have the caliber of medical facilities and Doctors that we have; Duke, Chapel Hill, Wake Med (heart), and Vidant in Greenville, a teaching hospiital...... There are others, but these four are within 45 minutes to 2 hrs. from my house.
Good luck and God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Mar 14 2013 at 12:09am |
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Snickers,
What a nice feeling after reading your recent post. It was so uplifitng. So glad your oncologist responded to your question about "if he thinks I will be alive next year at this time and have a good QOF and without hesitation he said YES!!! " Thinking though...... If you had updated him on your bucket list.........then he may have responded "YES for many years as you need to get thru your bucket list!" Really loved dmwolf's above wish to you. Hope Denise doesn't mind as I would like to echo it....wishing you continuing great health and spirits into infinity (at least). With caring and positive thoughts, Grateful for today...........Judy =========================== Turtle, Thrilled to hear about your planned Dr. Lisa Cary appointment. With caring and positive thoughts, Grateful for today............Judy |
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: Apr 25 2013 at 1:47pm |
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Snickers,
Continued caring and positive thoughts. Hoping ALL the dogs are behaving themselves! Grateful for today............Judy |
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snickers
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Joined: Apr 28 2012 Location: Washington Status: Offline Points: 134 |
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Posted: Apr 25 2013 at 8:01pm |
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Judy and All
Taurus my guide dog puppy I have raised for over a year is now in formal guide dog training. He has been my strength through all of my cancer and God bless him...he has spent his entire puppy hood in chemo and doctors offices. I miss him so much because of the strength he provided me. He left this Sunday and I picked up another puppy who I am raising for 2 months then will turn him over to another raiser in my club. I get all the "fun" of potty training and sleepless nights. Laddy is such a cute little yellow lab puppy. He is so smart! He brings me lots of joy and laughter. Lots of loving care and prayers to everyone Snickers |
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DX 10/31/11
6/13 lung/liver mets 9/13 NED lungs,liver met part.rem 5/4/13 NED lungs&liver 11/5/13 NED lungs..liver mets back LOTS LVR METS had y90 liver trtmt mets contrld 1/3/14 num brain mets |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Apr 25 2013 at 9:01pm |
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Snickers,
I have a special place in my heart for yellow labs. I've been trying to convince my husband we need another one to keep Casey company. So far he isn't buying it. So sad to see that Taurus has graduated. I'm sure he was such comfort to you. Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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sabinecalifornia
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Joined: Aug 31 2011 Location: Corona, CA Status: Offline Points: 152 |
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Posted: Apr 26 2013 at 11:11am |
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Snickers,
Enjoy your new puppy Laddy. I am pretty sure that Taurus wil be the perfect guide dog, because you are a special person and trained him so well. I know it is sad to let him go because he gave you so much strength, but maybe he was the reason you are NED now. I have a yellow lab puppy, he is 10 month now. He is a great dog and with my 2 orther dogs they provide a lot of comfort to me. Sabine
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DX TNBC 7/11 @ age 50, Stage 2A Grade 3, 1/19, LE/AD 8/11, BRCA1/2 neg.,
4 A/C, 10 Taxol, 2 Abraxane due to allerg. react. to Taxol, fin 3/12. 33 Rads 6/12. NED CT 8/12, 10/13, 10/14 |
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snickers
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Joined: Apr 28 2012 Location: Washington Status: Offline Points: 134 |
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Posted: May 09 2013 at 4:59pm |
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Ladies...
I am crying with joy! I had my ct scan yesterday and was waiting anxiously for the results today, thinking bad thoughts! My onc. just called me and told me I am still NED!!! I am so amazed as I have been on this chemo for 11 months and it is my miracle drug!! I have been on "maintenance" Gemzar for 5 months and it is still holding those nasty evil cancer cells back. Fight, fight to win Gemzar!!! A quick update before I have to leave to teach my middle school journalism class.... Taurus, my blk lab that I was puppy raising left on April 21st to begin his formal training to become a guide dog. He is in Phase 1 of 8 so he has a long way to go, but like us, one day at a time! If you want to check out what are pups are doing please go to our clubs facebook page: Pups 4 Partners and you can ooohhhh and aaahhhh over the cuteness! Thank you all so very, very much for keeping me focused on positivity and HOPE. Yes, there is HOPE. God is great! lots of cyber hugs and love Snickers |
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DX 10/31/11
6/13 lung/liver mets 9/13 NED lungs,liver met part.rem 5/4/13 NED lungs&liver 11/5/13 NED lungs..liver mets back LOTS LVR METS had y90 liver trtmt mets contrld 1/3/14 num brain mets |
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Suds
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Joined: May 01 2013 Location: Philadelphia Status: Offline Points: 24 |
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Posted: May 09 2013 at 7:33pm |
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Snickers,
I am SO incredibly happy for you! We all understand the genuine joy and hope this brings to you and all of us. I wish you NED forever! I received my 2nd Gem/Carbo today and hope I will have long lasting results like you. Hope you are celebrating the beauty of the day. God is watching over us. -Suds
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1/2012: 2cm mass, 1/16 nodes
4 AC, 4 T, mastectomy, 6.5 wks radiation Negative CT scan after chemo 3/2013: mets to nodes, brain, lung, early bone 4/2013: Neurosurgery + SRS 4/2013: Gem/Carbo started |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: May 09 2013 at 7:54pm |
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I'm joining you with tears of joy!!!! The recent news from you and Beth have given us all hope when dealing with mets. May you continue to receive good news and remain NED.
Hugs, Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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TriplePositiveGirl
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Joined: Oct 07 2010 Location: Los Angeles, CA Status: Offline Points: 667 |
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Posted: May 09 2013 at 8:08pm |
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so awesome snickers!
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Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: May 09 2013 at 9:08pm |
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Dear Snickers,
Praise God! I am so happy for you, and like Donna, I have tears of Joy for you and for Beth. Wonderful News.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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debB
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Joined: Sep 14 2011 Location: Central Illinoi Status: Offline Points: 692 |
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Posted: May 09 2013 at 9:58pm |
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Wow! You ladies are amazing! You and Beth are some cancer kicking warriors! What a wonderful gift you have been giving so that you can keep giving. So happy for you!
Deb |
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Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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Grateful for today
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Joined: Sep 21 2011 Location: U.S.A. Status: Offline Points: 1835 |
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Posted: May 09 2013 at 11:30pm |
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Snickers,
Awesome. May NED continue and continue and continue.................. With continued love, hope and prayers for a very special, inspiring, positive and hopeful woman, Grateful for today...........Judy |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: May 10 2013 at 12:11am |
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Snickers,
Fabulous News. May NED STAY WITH YOU FOREVER!
Hugs back to you...
Denise
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DX Idc 10/07,st2,gr3,2/6 lymphnodes
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