clinical trials MTNBC-BreastCancerTrials.org

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Dear
TNBC family,

I am posting information in the Metastasis forum because
BreastCancerTrials.org has also broken down the categories of trials for
metastatic TNBC.

Metastatic TNBC (MTNBC) to Bone Only

MTNBC to Brain

MTNBC to Liver, Lung, or Other Sites with Measurable
Disease

I think
BreastCancerTrials.org is an important, non-profit, resource. They have worked
hard to create separate information for TNBC and for full disclosure purposes
they requested that I try to help in the project and I did, as a
volunteer. 

This genesis of this site
is due in part to Dr. Debu Tripathy, a wonderful oncologist formerly at UCSF
and now at USC, as well as UCSF faculty members Drs. John Park and Laura Esserman.  

http://cancer.ucsf.edu/people/profiles/park_john.3583

http://cancer.ucsf.edu/people/profiles/esserman_laura.3704

There is an ongoing effort to make BreastCancerTrials.org a site of excellence.
The site now operates as a non-profit service, though it remains
affiliated with UCSF.

It takes a bit of time to register but I feel the effort is
worth it and in my opinion BreastCancerTrials.org is an excellent
resource. 

I encourage you to try to
spend some time on the site and become familiar with their features-

BreastCancerTrials.org has recently updated its website. As part of its redesign,
BCT has expanded its popular QuickViews feature
to include QuickViews developed specifically for patients with Triple Negative
Breast Cancer. Click on any of the links below to learn more about treatment
and other types of trials for each situation:

Early Stage TNBC

My friend, Elly Cohen,
Program Director for BreastCancerTrials.org has kindly authorized me to publish
her contact information. Elly is a breast cancer survivor. 

She is a lovely, very bright woman, and her heart is with our community. I am
proud that she is my friend. 

Here is Elly's contact info.

Elly Cohen
Ph.D.

Program Director
for BreastCancerTrials.org

Assistant
Professor, UCSF Dept. of Surgery

(415) 476-0264

elly.cohen@ucsfmedctr.org

www.BreastCancerTrials.org

I believe
there is a special culture at UCSF with many devoting an extraordinary amount
of time in an effort to help women with breast cancer. 
I also feel close to Debby Hamolsky who is an oncology
nurse at UCSF and is a clinical advisor to the site. She has devoted her life
to helping women with cancer and she is a marvelous woman. Here is a link to
some of the folks involved with the BCT.org site.

http://https://www.breastcancertrials.org/BCTIncludes/WhoWeAre/StaffAndAdvisors.html

I would also like to
mention Laurie Eisenberg, another breast cancer survivor, who has spent
countless hours developing this site. Another very special woman. I know I
sound repetitious but there are some amazing professionals at UCSF. Three more
that I would like to mention are Dr. Michelle Melisko who is a wonderful
oncologist who specializes in brain mets, Dr. Hope Rugo, a TNBC expert, who
specializes in clinical trials and Beth Crawford who I believe is one of the
top Certified Genetic Counselors in the U.S. When I first found out that I had
the BRCA mutation, eight years ago, Beth spent three hours with me patiently
explaining what my daughter, my other five children and I might be dealing with
regarding BRCA. She continues to work tirelessly to help folks with breast,
ovarian and other cancers and/or for folks at high-risk for various cancers. A
marvelous woman.

As you can see, my feelings for UCSF run deep and I am delighted to recommend
BreastCancerTrials.org as a resource. 

warmly,

Steve

Edited by steve - Oct 16 2012 at 7:29pm

clinical trials MTNBC-BreastCancerTrials.org

This is the trial I was referring to during my talk. It is for HER2+ metastatic patients with either stable disease or no evidence of disease.

The Cancer.gov record is: http://www.cancer.gov/clinicaltrials/search/view?cdrid=520428&version=healthprofessional