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Chemo resistant looking for trial in UK

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Jacquiedevon View Drop Down
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    Posted: Mar 04 2018 at 4:07pm
Hi

Been told that my recurrence is chemo resistant, rampant in my chest skin and need to pick the right trial..... not sure what to do
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 04 2018 at 5:41pm
Jacquiedevon,

I'm so sorry to hear about your recurrence.  I'm not familiar with TNBC trials in the UK.  You may want to send a private message (PM) to Steve, member name "SagePatientAdvocates".  He may know or be able to recommend sources in the UK to help you out.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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mainsailset View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Mar 06 2018 at 6:33pm
I ran across this link: https://www.ukctg.nihr.ac.uk/clinical-trials/search-for-a-clinical-trial/

also, your oncologist may already have some offered through his/her clinic.

I know that there are some trials that are shared between nations; ie Canada, UK, US.

Hopefully, they will determine which subtype of tumor you have and that will make choosing the next chemo successful.

Here's another link that gives the trials:   https://www.ukctg.nihr.ac.uk/trials?query=%257B%2522query%2522%253A%2522*triple%2520negative%2520breast%2520cancer%2522%257D

Edited by mainsailset - Mar 06 2018 at 6:41pm
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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