CarynRose |
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Shelly Rae 
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Joined: Apr 25 2009 Location: US Status: Offline Points: 318 |
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 Posted: Dec 29 2010 at 11:17pm |
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We will miss you Caryn, you taught us so much about this cancer fight. My regards to Caryn's family, peace to all of you. Shelly Rae
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4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED
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Kelly WIDIL
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Joined: Dec 04 2010 Location: WI Status: Offline Points: 26 |
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Posted: Dec 29 2010 at 11:31pm |
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Sorry to hear off the loss of Caryn.
New to the boards but can tell by the outpouring of love that Caryn was a special person.
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Dec 29 2010 at 11:40pm |
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I have no words, just tears falling and more tears.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Dec 30 2010 at 12:24am |
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How sad for everyone of Caryn's friends here on the boards...we all admired her and gained strength through traveling with her on her journey.
I, along with many others type through tears
Love and Prayers for you, Steve and the rest of her family.
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Dec 30 2010 at 1:03am |
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Winnie the Pooh must have been talking about Caryn when he said, "How lucky I am to have something that makes saying goodbye so hard." She was a special lady.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Dec 30 2010 at 1:33am |
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Ugh, so sad to lose her. I hope there is some sort of afterlife, and that in it Caryn is restored to health, soaring high above the earth with beauty and wind and a deep vision into all things big and small rushing through her. (Like my dream about death). Soar on, Caryn. You savored every last drop of life and taught us do the same, at least some of the time. By example you taught us to tell the truth, even when it hurts, and to hold on to that humor, even when it seems that there is nothing to laugh about. I admired the heck out of you, and will try my best to follow your example of living life to the fullest even in the face of adversity.
love, Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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msm082455
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Joined: May 15 2008 Location: United States Status: Offline Points: 22 |
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Posted: Dec 30 2010 at 6:45am |
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I wish I would have known her. I followed her journey, and am sad that it has ended. What a very classy lady she was. To all her TBNC friends, and to her family, I am very sorry for your loss.
May she now rest in peace...
Michele
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Michele,PA,55
Dx 8-04,IDC, Gr.3,3 CM Lumpectomy w/SNB,9-04,clear margins,Triple Negative 4A/C,4TA,Rads, BRCA 1 & 2, negative |
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becca
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Joined: Aug 20 2008 Location: Colorado Status: Offline Points: 153 |
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Posted: Dec 30 2010 at 8:34am |
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I am so sad right now...I also followed Caryn on this site and she was a strength to all of us. I will miss her so much. God bless her . Thank you Steve for taking care of her. HUG
Rebecca
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Age58 DX 12/07
Grand Junction, Colorado Lumpectomy 1/08/08 Stage IIIA grade3 5/19 nodes chemo 5/08 radiation 7/08 clear pet 9/08 |
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nosurrender
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Joined: Mar 13 2008 Location: United States Status: Offline Points: 42 |
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Posted: Dec 30 2010 at 8:44am |
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Dear TN sisters,
I am so sorry about the loss of Caryn Rose. She was a good friend and dear sister. May God bless her and comfort her family at this time. If ever there was an angel to fight for us in heaven, it is Caryn, that is for sure. Sending you all love, gina (nosurrender) |
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www.nosurrenderbreastcancerhelp.com
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Dec 30 2010 at 8:55am |
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Steve and Caryn's family,
I like Donna have tears and more tears. Steve, we thank you for sharing Caryn with us after she became unable to do so herself. She truly was special and so are all of you. Be kind to yourselves, grieve for her, lift up your heads and go on. She would want you too. GOD Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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Genie
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Joined: Apr 30 2008 Location: San Antonio Status: Offline Points: 390 |
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Posted: Dec 30 2010 at 9:09am |
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Sending love & sympathy to Caryn's family. A life cut way too short by this horrible disease. My prayers are with you.
Genie |
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Dec 30 2010 at 9:21am |
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Caryn Rose, your spirit will continue to live in each and every one of us. You have impacted the lives of so many, many people.
When we are placid in our disease, we will enjoy our lives, as you taught us. When we may be faced with problems and much fear, we will fight, as you taught us. Through the beacon that was your light, you will continue to teach us.
There is a bright new star in the sky from this time forward.
Steve and family, may love surround you all, always.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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Cebo
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Joined: May 13 2009 Location: New Jersey Status: Offline Points: 103 |
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Posted: Dec 30 2010 at 9:40am |
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God Bless you Caryn, Steve and your loved ones. I do not post much anymore but have followed every step of Caryn's journey and like everyone else here I dreaded this day and feel profoundly sad that such an amazing person has been lost so young--and that she had to endure so much in the final years of her life. I know I could never have faced Caryn's circumstances with the strength, candor and unselfishness she showed.
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Sister DX'ed 11/08
Lumpectomy & SN biopsy 12/08 1.1 cm tumor, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, completed 4/17/09 33 rads (incl 8 boost), completed 6/22/09 |
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overwhelmed
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Joined: Apr 06 2010 Location: Greenville, SC Status: Offline Points: 490 |
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Posted: Dec 30 2010 at 10:01am |
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At some point last summer, I stumbled across Caryn Rose's thread and read every entry that morning. I believe it started with her discovery that the cancer had spread and continued through to a time where her daily sufferring was apparent. Her courage, strength, and humor was evident as she faced this terrible disease. She was such a force, and she impacted so many. Her time here has ended, but she lives in the hearts of so many.
God Bless all of you.
Lori
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DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Dec 30 2010 at 1:01pm |
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Thank you Lord for your mercy upon Caryn Rose, her Mother, Steve, Steven & all her Family!
Family ties have certainly been predominant in this journey back to You Lord!
How to live, love, enjoy, show compassion, have empathy, find the humour in everything and friendship has been so visible in this journey from the first moment until the last breath was taken by Caryn Rose. I hope that others will learn that when a commitment is made to each other, there is nothing that can break that commitment. NOT even death....
The life we were blessed to be a part of has left this world, but Caryn Rose's memory will live on in the lives of the many people she has touched right here at this foundation as well as in her daily life. My deepest sympathy goes out to all of you, through my tears for the loss you are feeling right now.
"Grieve if you must, but not too long, for I am at peace and no longer feel the pain. Live your life to the fullest and in all things remember me." (An excerpt from my Mothers' eulogy)
Shalom,
Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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mjhoover@gmail.com
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Joined: Aug 03 2010 Status: Offline Points: 351 |
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Posted: Dec 30 2010 at 8:01pm |
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As tears roll down my cheeks at the loss of Caryn, I pray that Steve and the rest of Caryn's family find peace and solace in the memory such a wonderful woman! I have no other words to say but have many unsaid feelings. God Bless all of you!
I hate that this disease takes so many!!!! MJ
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Dec 30 2010 at 8:11pm |
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I knew this was coming, but I am not coping well. Caryn's death has hit me like a ton of bricks. I feel so...desolate. Anyone else?
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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SagePatientAdvocates
Senior Advisor 
Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 30 2010 at 8:27pm |
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Dear Denise,
I stayed in bed till 3 p.m. Heard from my friend in Rome that the Hospice nurse told him to longer sleep in his wife's room as she is in a deep coma and non-responsive. He told me how, a few days ago, even though she was so ill, when her little one year old granddaughter visited her she was so very, very happy. That combined with Caryn really put me in a very dark funk. I, too, have been expecting this but I find the sadness just washing over me. Caryn was a very, very special woman.. Denise, you are not alone, dear friend... love, Steve Edited by steve - Dec 30 2010 at 9:44pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Dec 30 2010 at 8:28pm |
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You are not alone, Denise, not at all. Caryn was such a fighter and had conquered so much along the way, so many of us just never imagined that she'd really lose the battle. It smacks us all in the face with just how vulnerable we all are to this damn disease. It rules our lives, it rolls our dice - I hate it with a passion. I thank my higher power, whatever or whoever that may be, it's been tested sorely lately - that we all have each other to hold on to.
Hugs,
Linda Edited by LRM216 - Dec 30 2010 at 8:29pm |
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Dec 30 2010 at 9:41pm |
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Yes, my heart is so saddened by the loss of Caryn Rose too! There are too many of our sisters loosing this battle after such a short time of being "clear" ......
As we read their journeys to the last breath makes this disease so REAL & FINAL but it is our faith that keeps us standing. The knowing we will all be together one day makes the loss almost bearable.
Each step we take, we wonder when it will be our turn, each time someone else has recurrence we rally around and pray for mercy and remission in all these treatments. Diane is receiving her treatments and reading Craig's posts keeps us close knowing how hard they are still fighting to stay with their loved ones even if the treatments are just prolonging the enevitable...
Our connection to this earth is obsessive because we don't remember where we came from. We are all going to leave one by one and how we share our journey, the difference we make in just one someone's life is the reason we are here! Caryn Rose, Diane, Steve (k), Donna, Denise, Carol, Lillie, EACH AND EVERY PERSON ON THIS FOUNDATION MAKES A DIFFERENCE IN EACH OTHERS LIVES and that is what this life is all about! We give, we share, we love, we receive, we work, we dream, we live, we die. That is life here on earth as we know it and the ones who are making a difference in this world by getting their story out to others, by travelling all over the world to be with people they love and sometimes for people they don't know, that is what we must do for everyone and when everyone feels the love and connection, then we will all be together forever in glory and wisdom of our Lord God.
Caryn Rose gave herself to everyone here and in her immediate family, friends and work mates. She led the way as a model for us. Steve her husband, Steve her brother & his wife, and her Mother showed compassion, love and commitment to their love relationship for their wife, sister, daughter and friend. What a wonderful way to remember a wonderful, loving person. I thank the Lord for allowing me to be a part of this her journey with triple negative breast cancer.
Steve (k) & Donna, you are not alone in your sadness. Blessings are being sent to you for the Spirit of the Lord to enkindle in your heart the Holy Spirit that will help you with the loss of dear Caryn Rose.
"Be still and know that I am God" and "If God brings you to it, God will bring you through it."
Hugs, h
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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