CarynRose |
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Carol (Tenn) 
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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 Posted: Dec 29 2010 at 11:54am |
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Dear Steve,
We sometimes forget the strain and pressure caregivers go through, we are so concerned with our patient.
Take the time....breathe a little...pamper yourself...
I'm sure her new red polish brightened her day.
We love and pray for you both.
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Dec 29 2010 at 5:51pm |
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an update from Steve
Little Time Left Now.....Posted 1 hour ago
......according to Hospice nurse Sue, who came to evaluate Caryn a day earlier than normal at my request. She called me at work at about 1:10p and gave me an approx 48 hr time frame, and after my co-worker got back from lunch, I came straight home. Brother-in-law Steve had called Evelyn earlier in the day and got a similar assessment so that when I called his cell phone at 1:15p, he was already in my kitchen. Apparently he and the plow guy teamed up and got our two spots cleared (YAY---and thanks to you both). As I type this Caryn is resting fitfully, and is breathing irregularly. Steve left a few minutes ago to go see Mom and he will return later, and my parents and daughter are enroute from Maryland. Let's all prayer for an easy, peaceful release from the pain and suffering...she deserves that much.... I love you Caryn. Steve |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Dec 29 2010 at 6:00pm |
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May God be gentle with Caryn, and also with you, Steve. You are both in my prayers |
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Dec 29 2010 at 6:02pm |
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I wish you peace.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Dec 29 2010 at 6:09pm |
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Peace our dear sister...
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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mysishastnbc
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Joined: Sep 22 2010 Location: AZ Status: Offline Points: 13 |
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Posted: Dec 29 2010 at 7:03pm |
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I'm so sorry. Thinking of Caryn and Steve and family so often. May you find strength and comfort. Will be praying for that for you.
Love, Janet
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Dx 7/2010 age-38
IDC TNBC, St-IIb, Gr-3, 2.5cm, BRCA- 8/10 MAST left side, and Axillary Dissection 1 of 16 Node+, DD Taxotere,Cytoxin x6 every 2wks - epirubicin x4 + gemzar x8.complete 2/8, rads. |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Dec 29 2010 at 8:05pm |
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May the peace of our Lord fill you all with the courage and strength to take these final hours together. + + + thank you for being such a wonderful husband and soul mate to Caryn and wonderful strong, caring, friend to all of us here at TNBC Foundation. You are Caryn's ROCK...Bless you. Caryn, we love and respect every step that you took with this horrible disease. You showed us what perseverance and love is! Thank you for sharing so openly your life and journey back to the One who Loves you so much too...PEACE, SHALOM....Helen in NS |
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Genie
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Joined: Apr 30 2008 Location: San Antonio Status: Offline Points: 390 |
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Posted: Dec 29 2010 at 8:19pm |
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Praying that Caryn's passage from this life to the eternal life with our Heavenly Father will be peaceful and pain free. Steve, you need to take time to grieve for this wonderful woman. You have both been an inspiration to all of us here on the forum.
May God bless you and keep you. Genie |
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
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hhfheidi
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Joined: Oct 02 2009 Location: Earth Status: Offline Points: 148 |
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Posted: Dec 29 2010 at 8:56pm |
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Edited by hhfheidi - Feb 04 2011 at 11:54am |
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outnumbered
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Joined: Feb 02 2009 Location: New Jersey Status: Offline Points: 525 |
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Posted: Dec 29 2010 at 9:18pm |
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I have posted this on Caryn's carepage and on her facebook page...
Although I have only been in the same room with Caryn one time, on a BC retreat, she means a lot to me. I first met her on the FORCE forum. It was there she was "yelling" at us not to wait and watch, but to be proactive, she did not want us to end up like her... It was then that I found this forum. I began PMing with her here to find a TN savvy oncologist in the area. I feel as if Caryn saved my life.
Caryn, you are the most generous, gracious, and fiesty lady I have ever had the pleasure of knowing, and I only wish you peace as you journey transitions over. Its time to stop fighting and allow the peace to find you...
Steve, I hope you find peace as well. I know it was been tough on you, please be kind to yourself.
A day does not go by that I have not thought of you both, and I am sure that will not change. You will remain in my thoughts and prayers always.
XOXO
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~Sara
DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG BMX (nipple-areola-sparing) 8/5/08 Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09 BSO 9/3/09 NED since 08/05/2008 |
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Momof2NJ
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Joined: Aug 11 2010 Location: Northern NJ Status: Offline Points: 113 |
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Posted: Dec 29 2010 at 9:25pm |
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I am so devastated by this. I had the privilege of meeting Caryn several times over the past couple of years. I last saw her at her 50th birthday party in July of this past summer.
Peace be with you my friend. I love you.
mary ellen
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2008 BRCA 1+ dx stg 1,gr 3 IDC triple neg. BM w/ recon. CT x 4. Prophy TAH 2007. Recurrence 9/13/10. 10/5/10 tumor excised. ACx4, Taxol x3, abraxane x 9. 38 rads. 7/11 NED!!!
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Dec 29 2010 at 9:39pm |
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Dear Caryn, Thankyou for all the love, support, humor and strength you have given to and shown all of us. You have left an amazing legacy, something you always wanted to but thought you didn`t. When I watched "It`s a Wonderful Life" this year I thought of you and how you have touched so many lives. One person can make such a positive difference to others. That is what you have done by sharing your life with us. I pray for a peaceful passing when God takes you into his loving arms.
Dear Steve,
My heart breaks for you. I hope you will find comfort one day knowing how much Caryn loves you and what a wonderful husband you have been to her. Please take time for yourself with no guilt.
God Bless,
Terri
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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jody
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Joined: Nov 04 2008 Location: La Verne, California Status: Offline Points: 105 |
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Posted: Dec 29 2010 at 9:42pm |
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Many of us who don't post often have still followed Caryns story, her strength, sense of humor and courage was nothing short of remarkble! May you pass peacefully Caryn, and thank you Steve for showing all of us what t is like to have a TRUE partner on this earth...
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diagnosed 4/16/08 stage 1, node neg TN grade 3,lumpectomy 4/30/08 chemo a/c 6 rnds, finished 9/08. Radiation begins 11/6/08 La Verne, California
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Dec 29 2010 at 10:00pm |
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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sue
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Joined: Aug 13 2010 Location: NJ Status: Offline Points: 650 |
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Posted: Dec 29 2010 at 10:06pm |
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This is difficult news to hear. I have never met Caryn Rose, but know what a beautiful, courageous, giving, loving person she is from her posts and the posts of those who know her.
I pray for her to have a peaceful passing and to know the joy of no more suffering. I pray for Steve to feel peace and joy also, in time, knowing that Caryn would want those feelings for him. Thanks to everyone who has shared in reporting this journey of Caryn's, and may you all be full of serenity knowing that Caryn would be grateful for all you have given of her to us here. With love, Sue
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Dec 29 2010 at 10:45pm |
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It is over..........................as Caryn would say....Thank you G-d. No Time leftPosted 6 minutes ago
Dear Friends, The light has dimmed and blown out...Caryn is now with the angels in heaven. The end was peaceful and serene and occurred at about 10:15 this evening.
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 29 2010 at 10:54pm |
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Dear all,
we just lost a dear, dear courageous woman... It was an honor to know Caryn...as others have written above she was an inspiration to me and countless others. She came from a family that had endured much. Her dad was a Holocaust survivor and also had the BRCA mutation that he passed to Caryn... So, in some way we were cousins as we shared the same mutation. After meeting her on another message board for a number of years I went to visit her the first time she was in CTCA. I think it was 3 years ago. I traveled to Philadelphia because I was drawn to her somehow. I saw her in the corner and immediately knew it was her as she was typing on her laptop. She showed me around CTCA and then went for a radiation treatment. It was a long one but she came out and refused to let me drive, even though she looked bushed..Then we had a lovely dinner with Steve's wonderful parents (My condolences to you both as well). The next time I saw her I had dinner with her and Steve and got slaughtered as we played Jeopardy together..The next time I saw her was several months ago when I visited her again at CTCA. I read her the Lord's Prayer at that time but she was not having any of that and remarkably bounced back. She had such a presence. Such strength. Such wisdom. Such a wonderful sense of humor and such intelligence. She also did not pull any punches about what she felt a BRCA+ woman should do regarding surgeries. I believe she saved many lives. Caryn, I shall miss you and in some mystical way I believe you will continue to guide my advocacy work. You were a true champion and a mensch. May you rest in peace, dear friend... and Steve, you defined what it means to be a good husband and I use my highest compliment, mensch, for you, too. We, here, grieve with you. My condolences to Caryn's brother and his family, as well and I can't find the proper words for her mom. The worst pain, possible. Losing a child. love to all here...Caryn told me this site was wonderful and she was so right...we have a beautiful family and we have lost a precious member and she will always be remembered...always.. through my tears, Steve p.s. Nancy, again thank you for your dedicated postings...
Edited by steve - Dec 29 2010 at 11:02pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Dec 29 2010 at 10:55pm |
AddendumPosted 5 minutes ago
Funeral will be held 12 Noon on Sunday at the Louis Suburban Funeral Home on Broadway at the Fair Lawn/Elmwood Park border. Burial to follow at King Solomon Cemetery in Clifton. |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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lisab
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Joined: Sep 27 2007 Location: United States Status: Offline Points: 169 |
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Posted: Dec 29 2010 at 11:05pm |
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I first met Caryn online when she and I found out we both had cancer mets. She was and will always be an inspiration to me. May God grant her eternal rest. I will miss you, dear sweet friend.
Lisa B. |
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Diagnosed June 2004. Lumpectomy and radiation. BRCA2+. PBM w/DIEP Recon March 2005. Mets in chest wall June 2007. Chemo (Gemzar and Carboplatin) with radiation completed January 2008 - 5+ years ago.
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zacar
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Joined: Jul 09 2010 Location: Sherman Oaks,CA Status: Offline Points: 299 |
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Posted: Dec 29 2010 at 11:16pm |
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I'm sorry I never got to know Caryn Rose but I followed her journey and found her to be a pillar of strength and always here for others. She definitely was an inspiration to many of us.
My condolences to Steve and her family. Caryn C.
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