Go To Main TNBC Website


  New Posts New Posts RSS Feed - bed/pressure sores - leg edema
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

bed/pressure sores - leg edema

 Post Reply Post Reply
Author
EileenF View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 20 2010
Location: New York
Status: Offline
Points: 197
Post Options Post Options   Thanks (0) Thanks(0)   Quote EileenF Quote  Post ReplyReply Direct Link To This Post Topic: bed/pressure sores - leg edema
    Posted: May 15 2011 at 11:08pm
Hi  All

After 1 week of hospital bed and 1 week home too week to move I have an ugly bed/pressure sore on my lower back/butt plus lower leg edema = swollen weepy feet and ankles   I am taking lasix to try and help with the edema but it is slow going.  I also have left arm and shoulder lymphedema I am working with a physical therapist to reduce, but it is hampered by IBC inflamed lymph nodes and of course the tnbc chest wall, breasr and lung tumors         

So 3 weeks later in addition to my chemo side effects I am trying to conquer these issues -has anyone dealt with pressure sores or lower leg edema and have some tips to share?   I am alternating keeping the legs up,  exercising them and walking for 3 minutes at time to build strength up I don't know which is best
7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag;
Back to Top
SagePatientAdvocates View Drop Down
Senior Member
Senior Member
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4456
Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2011 at 1:07am
Dear Eileen,

I am so saddened to read this. You have enough grief without this on top of it. I am hopeful some folks will respond and in the meantime, I sent you an email with some thoughts...

prayers continue,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
Barbi View Drop Down
Senior Member
Senior Member


Joined: Jan 04 2011
Status: Offline
Points: 471
Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2011 at 9:21am
Eileen: The nurse is about to come out (with a disclaimer that cancer was never my specialty). Sounds like you are doing the right thing for your legs - elevate the legs about your hips several times a day, take your lasix, walk and move to avoid blood clots and build your strength.  Did you get the pressure sore while in the hospital?  If you are on home health, make sure you show this to the nurse as they will get the order to treat or have a wound care nurse assess and direct treatment.  If you are not, call you doctor and find out what treatment they want.  It will depend on the stage of the ulcer (just red, just the top of the skin open, open to muscle, etc).  Make sure you are not lying flat on your back but alternate just slightly (or alot, your comfort) from side to side every couple of hours to keep pressure off of it.  Those sores come from pressure restricting blood flow to that area.
 
Hope I haven't just given you a bunch of info you already have.  If so, please forgive. Those sores can get nasty really quickly and are hard to heal.  Oh, and get lots of protein and fluid!
Barbi
Back to Top
EileenF View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 20 2010
Location: New York
Status: Offline
Points: 197
Post Options Post Options   Thanks (0) Thanks(0)   Quote EileenF Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2011 at 10:50am
Thanks Steve and Barbi,  
7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag;
Back to Top
Lillie View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 10 2009
Location: Eastern NC
Status: Offline
Points: 3609
Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2011 at 2:14pm
Hello Eileen,

My goodness, you have a "boat load" of problems here, all at once. I am so sorry.

I agree with Barbi that you should consult someone in the medical field about the pressure sore.

I will say that my mother (when she was living) had a bed sore in about the same proximity as you describe yours. She was in a nursing home for about 5 weeks after a debilitating stroke from which she did not recover. I was told by her physician to keep zinc oxide on the area of the pressure sore at all times. Also, we had to keep her turned often so she would not be putting pressure on any one area for an extended period of time. Once this process was started the sore did not get any worse.

Hopefully, since you are able to move about some on your own, it will keep the pressure sore from getting any worse. Hopefully, it will begin to reverse itself. You will have to be diligent in caring for the pressure sore.

I will keep you in my prayers that your edema, pressure sores, and other health issues begin to improve.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2015-9 yrs NED
Back to Top
TNBC_in_NS View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2011 at 2:51pm
Dear Eileen:
 
You certainly are having a hard time! Ouchie on all parts.
 
1.  Your behind needs to be tended to immediately.  Pressure sores are so hard to heal when they continually have pressure on them.  Get yourself a sheep skin for laying on.  They are at the pharmacy or call the Cancer Society to let them know you need one.  The Occupational Therapists have them as well.  Have the nurse who is doing home care put a request into the physician for wound care immediately.
 
2.  Lymphedema is brutal.  God love ya.  If you have coverage try to get a massage therapist that specializes in Lymphatic Drainage. . If you do not have coverage tell the Cancer Society you require this too. It is very important for your well being.  There are registered massage therapists who will come to the home and while you are still not very mobile, please get someone in.....
 
3.  Walk and move your legs as often as possible.  I know you are tired but the more you are off of the pressure sore the better and your being mobile will enhance the drainage with the Lasix.  Watch for your potassium while on Lasix it depletes it. 
 
Get some cans of soup and use them in each hand to move up and down to keep the movement going in all your joints and muscles.  If you can, get a cane as a support and walk as much as possible.  You will find you can do this easier once your pressure sore is healing... Make sure your pressure sore is clean and free from fuzzies from our special blankets, put a clean gauze dressing on and rotate from side to side every twenty minutes and do not stay on your back for too long. 
 
There are gel seats for wheelchairs that you can use in a regular chair if you can sit. 
 
I am not a physician but have worked in this area for many years with physicians and therapists and have seen results of their treatments, they work darlin!
 
Take care and let us know what we can do for you. Hugs, from Nova Scotia Helen
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
Back to Top
suec View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 10 2009
Location: jacksonville, fl
Status: Offline
Points: 240
Post Options Post Options   Thanks (0) Thanks(0)   Quote suec Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2011 at 5:53pm
lyphodema is a twist i foolishly didn't expect but caught at early stage and the massage and wrap have been medicare covered and now am ready for compression sleeve ...no pain, just big  investment of time.  good luck getting coverage so this new issue can become one of the lesser problems
suec
tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx
Back to Top
dmwolf View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2011 at 12:21pm
Eileen, sweetie, I hope the wound heals soon and the swelling subsides.  You must feel like Job.  How are you today?  Have you been able to do some walking?
Hang in there.

Love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
Back to Top
zacar View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 09 2010
Location: Sherman Oaks,CA
Status: Offline
Points: 299
Post Options Post Options   Thanks (0) Thanks(0)   Quote zacar Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2011 at 11:51pm
Hi Eileen,

I'm sorry you are having such a difficult time.  I am sending you lots of healing light and love.  I hope things get better very soon!  You deserve a break!

Love,

Caryn
DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 1:41am
Eileen how awful you are dealing with so much!  Would it help to increase the lasix dosage I wonder?
 
When I was dx with CHF we had to work with my dosage, increase it a bit so that it would work better.  Big hug, I can only get in here on occasion for some reason not sure if this will go thru, missing all of you.
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
mjhoover@gmail.com View Drop Down
Senior Member
Senior Member


Joined: Aug 03 2010
Status: Offline
Points: 351
Post Options Post Options   Thanks (0) Thanks(0)   Quote mjhoover@gmail.com Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2011 at 10:18pm
Eileen, I am a bit drugged from pain meds so I hope I make sense. I am sor sorry you are having such a hard time with the pressure sores! Be sure to get home health right away so they can evaluate and treat you at home. There is a whole protocol they use to treat pressure sores. Be sure when you are in bed that you change positions at least every couple hours and do not lay on your back(you most likely cannot anyway at this point). There are nurses that can come in and help you with what you need to do. Once you are up and around it will be easier for it to heal. Wound care is also a very good idea. They are experts at healing this kind of thing. You want to be sure you are working with folks that TREAT this kind of thing. It is a specialty just like any other specialty. Good luck and take good care! MJ
7/08 IDC L Br, mast 1/16 node +,St 2 gr 3, 6 rounds TAC
7/10 Mets to lungs, nodes abdomen BRCA-
8/10-1-11Abraxane/Avastin
7 11 3.3 cm tobrain sstem/rt cerribellium WBR 15 rds
Poss trial at MDA after
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12888
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2011 at 11:01pm
Eileen,

I don't know if this will help, but can they bring in an air mattress to place over your bed?  When my grandmother was under hospice care at the nursing home they brought in a special bed for her.  It was like an air bed that they placed over the mattress and it helped relieve the pressure sores she was developing.  If you're getting home health care, they should know about situations like these and have some suggestions to help you.

I'm so sorry you're going through this and hope you get some relief soon.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
Debris View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 07 2010
Location: Forsyth,Georgia
Status: Offline
Points: 756
Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: May 22 2011 at 11:10pm
Eileen, how are you doing? Hoping this is a good week for you.

Deborah
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
Back to Top
SagePatientAdvocates View Drop Down
Senior Member
Senior Member
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4456
Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 22 2011 at 11:23pm
Dear Deborah,

you may have missed this thread-


all the best,

Steve


I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 11.05
Copyright ©2001-2016 Web Wiz Ltd.