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Anyone refuse chemo

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Penny View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Penny Quote  Post ReplyReply Direct Link To This Post Posted: Aug 04 2018 at 7:40pm
chemo is very doable... 
DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.

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cmp View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cmp Quote  Post ReplyReply Direct Link To This Post Posted: Aug 10 2018 at 7:06pm
Penny,

You were advised to do chemo Stage 1A grade 2? Did your oncologist go by the national guidelines:

or was he/she aware of this report:
https://www.mdedge.com/familypracticenews/article/97068/oncology/stage-trumps-biology-most-small-triple-negative-breast

Any other early stage T1a or b node negative, clear margin patients on this forum who refused treatment (rads and chemo)? Please share your experiences.


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Penny View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Penny Quote  Post ReplyReply Direct Link To This Post Posted: Aug 10 2018 at 8:14pm
Yes, they were aware of the NCCN guidelines and said since my tumor size was .6cm I fit into the "chemo" category.  .5 and below it would have been "considered" or optional.   .6 cm put me into the next bucket!  I wanted to make sure I had the most aggressive treatment possible and the MO and second opinion said chemo!

Hope that helps, Penny
DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Meadow Quote  Post ReplyReply Direct Link To This Post Posted: Aug 13 2018 at 12:48am
cmp, my oncologist gave me the option of "treatment with a somewhat less toxic, shorter regimen," that is described in the second article you provide a link for. But it was still chemotherapy. I chose the more standard regimen because it had a slightly higher chance of success. I told my oncologist: "I want all the percentage points I can get." She said: "It's up to you, but that's what I would do if I were you." I was Stage 1 with a 1cm tumor. My sister had a 6mm tumor. At that smaller size, the lighter regimen had the same chances as the heavier one, so the lighter regimen was the only one given to her. We're both doing well 7-8 years down the road.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Plume Quote  Post ReplyReply Direct Link To This Post Posted: Aug 13 2018 at 4:35am
Thank you for telling us your experience, Meadow.  It's lifted my spirits somewhat as I have been a bit depressed of late and feeling some sort of undefined anger.

I don't beat myself up if I am a bit grumpy and low in spirits BTW because I reckon I have earned the right to feel like that.

I had the whole kybosh, op, chemio, radio as advised and I was in no position to resist.  So no decision needed on my part, just as well!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote VEA2018 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 14 2018 at 2:15pm
Penny thank you for your post. My mom is 74 years old and she had .6 cm tumor on her left breast I ask the oncologist if chemo was avoidable he recommended a clinical trial instead less toxic due to my mom age. He suggested surgery than a clinical trial but I also mention radiation he did not suggest at all. I was curious what type of chemo did you had? and how many treatments?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cmp Quote  Post ReplyReply Direct Link To This Post Posted: Aug 14 2018 at 9:16pm
VEA2018,

Can I ask what clinical trial was offered to your mother (what medication/who offers the trial)? It is interesting to me that he would not suggest radiation but advise the chemotherapy. I wonder why. 
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Penny View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Penny Quote  Post ReplyReply Direct Link To This Post Posted: Aug 14 2018 at 10:31pm
TC was the protocol.  4 infusions, 3 weeks apart with RADS to follow.  
DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Asovey Quote  Post ReplyReply Direct Link To This Post Posted: Aug 15 2018 at 4:08pm
I had a 5 cm, grade 2/3b tumor.  I knew there was no question about chemo and I had 4 rounds of dose dense AC and 12 weekly Taxol with Carboplatin every third infusion.  I had read so much and heard horror stories.  Remarkably, I had few issues other than fatigue.  I followed the doctor's orders about taking the meds to lessen side effects and I think that was a key for me.

When I had my lumpectomy the entire mass was gone!  I did have some DCIS and lymph node involvement so I then had a mastectomy.  An auxillary lymph node disection was done with the lumpectomy.

I sure would want my oncologist to use their biggest guns.  TNBC is such an aggressive cancer I want every possible chance to keep from a reoccurance!


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Post Options Post Options   Thanks (0) Thanks(0)   Quote VEA2018 Quote  Post ReplyReply Direct Link To This Post Posted: 22 hours 53 minutes ago at 3:43pm
CMP thank you for your post. I have to retreat my post on aug. 14. I was wrong what the oncologist suggested. For my mom first is surgery then chemo treatment, that will depend on how many lymph nodes are removed including with a clinical trial, call Adjuvant PVX-410 Vaccine and Durvalumab in stage 2/3 triple negative breast cancer. I asked the dr. is this clinical trial is for stage 2/3 triple negative breast cancer he mentions it does not make any difference this will help her for a reoccurrence. The location Lee Moffitt Cancer Center and research institute in Tampa Florida. I asked about radiation he said if no lymph nodes are involved then radiation only.
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