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Any Members in the WNY Area????

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WNYMom View Drop Down
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    Posted: Aug 05 2015 at 5:44pm
I am looking to touch base with members in the Western New York area. 

Thank you!
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Tamara View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tamara Quote  Post ReplyReply Direct Link To This Post Posted: Aug 06 2015 at 9:04pm
WNYMom,
I live in Cattaraugus County. I was diagnosed with TNBC in March of 2014 at 48 years old. I had a 1.8 cm lump and was referred to the Breast Care Center of WNY. I opted for a lumpectomy, followed by partial radiation (2x a day for 5 days) then 4 rounds of AC and 12 rounds of Taxol.
It has been a journey . . . All through treatment - I did not meet one other patient with TNBC so I turned to this forum.
At times I wonder what is "normal" - I was running a low grade fever a week ago and called my family physician to get checked. Thankfully it was just a virus!
I am just beginning to feel like I have my energy back. It took longer than anticipated but I am walking almost every day and actually felt great jogging this week.
May God bless you,
Tamara
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Post Options Post Options   Thanks (0) Thanks(0)   Quote annemalo Quote  Post ReplyReply Direct Link To This Post Posted: Sep 30 2015 at 12:31pm
Hi there,
 
Sorry for the late response- I haven't been on this site in months!
 
I am from WNY- specifically, I live in Lancaster. 
 
I was dx in July 2007, a week after my 37th birthday.  My breast surgeon is Dr. Bauer and my oncologist is Dr. Soniwala.....he is a literally a life-saver!
 
I've been in and out of treatment due to recurrences for the past 8 years- I've had a lumpectomy, robotic thoracic surgery and a left mastectomy, all followed up with chemo and rads various times; the past 2 years I have been on chemo for maintenance to keep the bastard tumors in my lymph nodes contained. 
 
WNY Mom and Tamara- Hope you are both doing well!!


Edited by annemalo - Sep 30 2015 at 12:33pm
DX:7/07 age 37, 0 LNs, ACT, Rads, BRCA-

Recur 8/09 IMLN Taxotere/Xeloda, LN res, left mast, rads

2nd recur 11/10 2 Supraclavic LN, Gem-Carbo     

3rd recur 6/13 LNs. Xeloda, Navelbene, Gem, Halaven
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WNYMom View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote WNYMom Quote  Post ReplyReply Direct Link To This Post Posted: Sep 30 2015 at 3:59pm
Tamara - Thank you for writing back! It sounds like you are doing better and better each day. Hang in there! 

Annemalo - I live near Williamsville. I was dx, Sept 2014 at 41. I had a lumpectomy, AC+T and rads. I finished up available treatments at the end of April 2015. I am so sorry to hear that you have had recurrences. You are brave and courageous. 

Let me know if you would ever like to touch base.

Be well!


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