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Post Options Post Options   Thanks (0) Thanks(0)   Quote srjames Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2010 at 10:53am
Hi Donna,
I'm taking 1000 mg a day of Curcurim.  I wasn't ever able to find an article stating the amount to take a day so I follow my gut and take 2/day.  Along with Wobenzym N another anti inflammatory enzymes.
 
-Shelly
 
 
dx 5/09.Age 41 Inflammatory BC IIIC. 4 AC 4 Taxol, Dbl 10/09. 35 rads ended treatment 12/31/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2010 at 11:39am
Shelly,

Thanks for your input. 

The only dosing information I've found was from the No Surrender website:

http://www.nosurrenderbreastcancersurvivorforum.org/post?id=4530242

"Minimal effective dosing is 500 mg/daily of curcuminoid component (one capsule daily), but this can be escalated to up to at least 1500 to 2000 mg daily . . ."  He goes on to detail when higher doses are recommended.  To me it seems that the dosing range can vary widely.  This was why I wanted to see the dose levels other women are taking.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2010 at 12:18pm
I think some people have stomach irritation from it so it is very individual how much you take.  I take 300 mg 2 x day. 
Diagnosed TNBC 9/2009. Stage 3, Chemo TC
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 29 2010 at 7:39am
Maryjahn,  Thanks for the heads up about possible stomach irritation.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 01 2010 at 7:54am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 01 2010 at 7:57am
Lifestyle steps to consider.

http://www.anticancerbook.com/steps.html
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 01 2010 at 7:59am
20 Food and Non-Food Rules.

http://www.anticancerbook.com/rules.html
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 03 2010 at 11:17am
Pam posted this link in the resource section about Curcurmin.  Thanks Pam for finding it. 

http://breastcancerfightnowbydraarontabor.blogspot.com/2010/01/curcumin-kills-triple-negative-breast.html

Curcumin Kills Triple Negative Breast Cancer Cells in Culture

Curcumin is a natural component of the spice turmeric that is responsible for the spice's yellow pigment.  Previous research in cell culture systems and animals has suggested that curcumin might have a variety of anti-cancer properties.  In fact, a recent paper reported that the combination of curcumin and piperine, an active chemical from black pepper, might inhibit the self-renewal of breast cancer stem cells.

A new research study suggests that curcumin might also have cancer fighting benefits for individuals with triple negative breast cancer.  Triple negative breast cancer is a specific type of breast cancer that is defined as lacking in estrogen receptors, progesterone receptors and HER2 receptors.  Triple negative breast cancer is typically considered to be more aggressive and presents as a higher grade of breast cancer.

In this new study, breast cancer researchers treated triple negative breast cancer cells with different amounts of curcumin in a cell culture system.  Curcumin was shown to have a number of cancer fighting properties in this system:
  • Curcumin induced DNA damage in triple negative breast cancer cells
  • Treatment with curcumin caused a localization of BRCA1 such that it was unable to repair the DNA damage.
  • Curcumin induced the death of triple negative breast cancer cells within 72 hours, while having minimal effect on non-cancerous breast cells.
  • While both triple negative breast cancer cells and hormone-positive breast cancer cells were susceptible to curcumin treatment, triple negative breast cancer cells were more sensitive.
  • Curcumin suppressed the ability of triple negative breast cells to grow independently and to migrate.

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 04 2010 at 10:08pm
http://www.medicalnewstoday.com/articles/183880.php

Pam posted the above in the News, Resources, Tips section.

It's an article about multivitamin linked to increased risk of breast cancer.   What next? 
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote brossart Quote  Post ReplyReply Direct Link To This Post Posted: Feb 09 2011 at 5:01pm
This support group hasn't had a lot of activity lately. Are there no ladies out there looking into non-traditional treatment for their cancers? 
 
I have been reading a lot of stuff (Cancer-Outside the Box book, Cancer Tutor web site, etc)- but have noticed a lot of the big centers cost tons of $ and involve traveling.  I'd love for someone who is reputable to walk me through something like this. Don't want to take chances, but also don't want to do more damage to myself for the future.
 
Danielle
dx 1/3/2011, triple negative,no lymph involvement
Lumpectomy 2/8/2011
Starting MammoSite radiation 2/14/2011 (happy valentine's to me!)
Chemo Cytoxin/Taxotere afterward
 
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Feb 10 2011 at 2:23am
Hi there!
 
I haven't come to this site for quite some time now.  Couldn't get a proper thread going here and out of frustration most of us moved over to the breastcancer.org site.  There are some great TN threads there and I hand out on the naturegirl thread.
 
Best,
MBJ (this is what I go by on bco)
Diagnosed TNBC 9/2009. Stage 3, Chemo TC
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LauraT Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2011 at 4:14pm

Danielle,

I am just now seeing your post, but I read 2 books I that I thought were very helpful and balanced as far as not knocking traditional medicine, but at the same time offering some evidence-based recommendations on lifestyle, diet and supplements.
 
Anticancer by David Servan-Schreiber, MD
Life Over Cancer by Keith Block, MD
 
I am also following the EDGE-CAM supplement recommendations at http://www.nosurrenderbreastcancerhelp.org/index.html
 
How are you feeling?  I did not have radiation, but I did have the same chemo you will have.  If you have any questions, let me know!
 
Take care,
Laura
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lpham Quote  Post ReplyReply Direct Link To This Post Posted: Mar 05 2011 at 11:57pm
Hi,
I'm new to this thread. I didn't know it existed so I'm so glad I stumped upon it.

I was diagnosed in September 09 and went through surgery, chemo and radiation. In January I noticed a tumor on my neck and PET scan shows another tumor in the chest again tnbc.

I haven't started treatment yet and is seeing a homeopathic specialist. I've spent the last month researching alternative medicine and is convinced that integrated or complimentary medicine is the way to go. I want to avoid conventional chemo but can live with lose dose. I've changed my diet and started taking supplements, many are the same as the ones listed on this board. In addition, I take fucoidan supplement and detox drink.

I'm considering going to an alternative clinic for treatment. A friend of mine referred me to the Century Clinic in Reno by Dr. James Forsythe. He uses insulin potentiation therapy and other supplements. Her husband went there 6 months ago. I was wondering if anyone on this site has use this clinic or any alternative/integrated medicine clinics. I even consider going to Germany. Since the expense is a huge factor for me, the decision is a difficult one.

Thank you for your feedback.
Lpham
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Mar 06 2011 at 12:54pm
Cancer cells are a mystery, yet to be unraveled. I would consider all therapies in conjunction with one another rather exclusively one or the other.
Take care and good luck with your research!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angelight Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 5:33am
Hi Ladies
its refreshing to see a thread & topic that is close to my heart. I was recently diagnosed with a grade 2 IDBC .. on the 3rd May I had surgery lump & wide margin removal + 5 nodes.
I went back this Monday & was told I was stage 1 but upgraded to a grade 3 triple Neg... my lump was 8mm on last scan (2 weeks) b4 opp & on path report it was 7mm .. I will definately be having the radiotherapy. When I asked about chemo they agreed in the meeting that I was "boarderline" if to have it or not .. I have spoken to a few women in my situation who despite the low % rate seem to chose chemo as a precaision. I was told by my Doc at the hospital that I needed to talk to an Oncologist which will happen this coming Monday. So right now im feeling a bit stressed & unsettled just as I did when I was 1st diagnosed.
I HATE the thought of chemo .. if there had been any invaision in the margin or my nodes were not clean I would def say yes to chemo Also I do think there are alot of woman less brave than me that go for it. I suffer terrible anxiety & suffered agraphobia for many years so the fact I got to the hospital for all my appointments I thought was a major strength in itself.
I too have changed my diet cut out fats & eating natural food / Juices .. the 2 weeks after my surgery I felt very confident & listened to Brandon Bays *the Journey* I also do alot of Angel meditations & have now tracted down a Journey practitioner in my area who im hoping will come work with me on the Journey Prosseses
Im dreading this Monday .. I got that feeling in my bones that the Oncologist will say the % of survival after 10 years & its just going to put my brain into over drive .. I too have studied alot of stats .. I know there is no guarentees with chemo even for those with hormone poss BC
How I see it now is my cancer is OUT of me ... theres the saying in't there " dont try fix what is not broken"   !   Im asking myself do I want to have chemo put my body through the grueling side affect ? weaken all my internal organs which is never guarenteed that they ever recover fully . Im also a GREAT believer that chemo may kill cancer but it does not get to the root cause to why the cancer appeared in the 1st place & unles that is addressed, spiritual level or whatever .. then are we doing ourselves any favors
It will be interesting to see what the oncologist has to say, I too have known many people go through many rounds of chemo to lose their battle & that seems so unfair IF chemo is so brilliant WHY does this happen I ask myself
I would love to hear from anyone who has same stage & grade of tripple neg that chose just to have Radiotherapy & still kicking high many years on
Thank you
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 7:45am
Hi Angelight,

Thank you for sharing your story.  You might want to post it in the Welcome thread as more women will see it and give you feedback.  There are several women on our forum that had a similar size tumor as you.  I hope they will share their story.  Here's the thread:

http://forum.tnbcfoundation.org/topic8_post83323.html#83323

Donna


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angelight Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 8:46am
thank you donna I did that
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angelight Quote  Post ReplyReply Direct Link To This Post Posted: May 21 2011 at 3:45am
Wasn't sure where to post these hope its ok to post here .. 2 books ive found a great help & support
Brandon Bays The Journey & Martin Brofman Anything can be healed ... both have accompanying CD's & visualizations Martin's healing Vibrations is a wonderful relaxing visualization I do this one before I sleep its helped me Smile hope it will be of some help to others very reasonable I got mine from amazon
Diag 21/4/11 Stage 1 IDC grade 3 HER2 neg ER neg PR not teste ? 0/6 node lump 7mm smooth 'free' no attached blood vessels
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jun 07 2011 at 7:42pm

Tea mechanism in preventing autoimmune disease uncovered



In an article published online on May 20, 2011 in the journal Immunology Letters, researchers at Oregon State University's Linus Pauling Institute report a mechanism for green tea in suppressing autoimmune disease: an imbalance of the immune system which results in the body attacking itself. Autoimmune diseases range from childhood allergies to fatal diseases including amyotrophic lateral sclerosis (ALS). Although treatment with pharmaceutical agents can help regulate immune function in autoimmune disease, the drugs are frequently associated with toxicity.

Oregon State University Department of Nutrition and Exercise Sciences associate professor Emily Ho and her associates studied the effect of the green tea polyphenol known as epigallocatechin gallate (EGCG) in cell cultures and in mice. They found that EGCG increased the amount of regulatory T cells (which help dampen the immune system), whose function is regulated by processes that involve transcription factors and DNA methylation.

“EGCG may have health benefits through an epigenetic mechanism, meaning we aren’t changing the underlying DNA codes, but just influencing what gets expressed, what cells get turned on,” Dr Ho elaborated. “And we may be able to do this with a simple, whole-food approach.”

“Epigenetic regulation can be potentially exploited in generating suppressive regulatory T cells for therapeutic purposes, and is of significant clinical importance for the suppression of autoimmune diseases,” the authors note.

Dr Ho concluded that EGCG "appears to be a natural, plant-derived compound that can affect the number of regulatory T cells, and in the process improve immune function. When fully understood, this could provide an easy and safe way to help control autoimmune problems and address various diseases.”

http://www.lef.org/newsletter/2011/0607_Tea-Mechanism-in-Preventing-Autoimmune-Disease-Uncovered.htm?source=eNewsLetter2011Wk23-1&key=Article&l=0#article
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2013 at 9:18am
I wish we had a complimentary, holistic and alternate therapy section.  We're all adults capable of making the right decisions for OUR treatment.  I really hate to see this die out.

Thanks to Donna and others for keeping the Vit D and other vital supplement threads alive.  If it weren't for the Big Pharma I guarantee there would be a cure for a lot of diseases by now.

I want to know how we're really going forward w/ breast cancer - where's the great progress in the last 25 years?
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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