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    Posted: Oct 07 2009 at 1:53pm
Please use this topic for Alternate Treatment

Edited by Admin - Oct 07 2009 at 4:33pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TexasGal Quote  Post ReplyReply Direct Link To This Post Posted: Oct 07 2009 at 5:58pm
Thanks to Admin for noticing that this forum topic would be a great place for those that choose alternative treatments to have discussion.  This will offer the opportunity for those to speak out  without others that do not agree making them feel as if they are wrong or have made the wrong decision.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 08 2009 at 7:25am
Dear TexasGal,
 
You are so right, and I have taken the initiative to post on breastcancer.org, and invite the women from there who are dx with TNBC, and have chosen alternative treatments, to join our site also. They are supported on that site and now they will be supported here also. I asked Administration for this forum. I already thanked them.Big%20smile
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 09 2009 at 3:56pm
For those women undecided as to radiation after diagnosis, who have been on alternative therapies.
Nancy
 
 


Edited by Nancy - Oct 09 2009 at 5:27pm
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sunris Quote  Post ReplyReply Direct Link To This Post Posted: Oct 09 2009 at 5:20pm
Wow!! Certainly makes you think!! I have actually over time ran across several articles regarding this type of thing. I guess so many are left feeling "damned if I do....damned if I don't" ....

Regardless, I believe that God has a plan for everyone and our days are numbered. His will shall be done when he sees fit regardless of medical options chosen... (oops, I bet I was supposed to take this over to the new "spiritual" thread?)

Dawn

Age 43 at DX

DX 3-09 IDC 3.9cm

TN-Stage2-Grade3

Taxolx9, FACx2, halted TX,

Lump.8-25-09..rads x 8wks.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TexasGal Quote  Post ReplyReply Direct Link To This Post Posted: Oct 09 2009 at 6:17pm
Nancy & Sunris,
 
I looked this man up to see how much credibility he has. Just like many others, I too am skeptical when there is no credibility, however, Here is what I found. From this wikipedia "definition" of him, he seems to have been very accomplished.
 
 

John William Gofman (September 21, 1918 - August 15, 2007) was an American scientist and advocate. He was Professor Emeritus of Molecular and Cell Biology at University of California at Berkeley. Some of his early work was on the Manhattan Project, and he shares patents on the fissionability of uranium-233 as well as on early processes for separating plutonium from fission products. Dr. Gofman later worked in medicine and led the team that discovered and characterized lipoproteins in the causation of heart disease. In 1963, he established the Biomedical Research Division for the Livermore National Laboratory, where he was on the cutting edge of research into the connection between chromosomal abnormalities and cancer.

Later in life, he took on a role as an advocate warning of dangers involved with nuclear power. From 1971 onward, he was the Chairman of the Committee for Nuclear Responsibility. He also described himself a libertarian and spoke at several events sponsored by the Students for a Libertarian Society in 1979 and 1980. He was awarded the Right Livelihood Award for his work on the effects of the Chernobyl disaster's low-level radiation exposure on the population.[1] John Gofman died of heart failure on August 15, 2007 in his home in San Francisco.

 
 
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Has anyone tried Medical Qi Gong? My accupuncturist has recommended it as apparently it is especially beneficial for those with cancer. It is an old Chinese healing system... there are a few places near me that do classes and sounds interesting. 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 10 2009 at 7:26am
Dear gardenbeetle,
 
Hi and welcome to the site. I recognize your user name from another site. Wink So glad that you have joined here also. Could you give more detail as  to Medical Qi Gong?
 
If I may make a suggestion, please look through the threads on the TNBC talk forum, as vitamin D3 is being touted in the medical profession as being a cancer fighter, and if you are not taking it, you might want to consider this?
 
If it is not too personal, will you please tell us what you are doing as to alternative treatments?
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gardenbeetle Quote  Post ReplyReply Direct Link To This Post Posted: Oct 10 2009 at 7:43am
Hi Nancy, I haven't tried medical Qi Gong yet, it is something I am considering as I am looking for a form of exercise I can take up that is as beneficial as possible for my condition. I was considering Tai Chi and Yoga, until I heard about this - I'll post more after I've tried a class!

Re alternative treatments, so far I have done the conventional surgery (lumpectomy) and am in the middle of radiation treatment. I declined chemo for a number of reasons, basically the advertised potential benefit was too small considering the negatives, in my personal situation.

I am therefore researching alternative/complementary approaches to try to prevent my cancer returning (it was early stage 1 - no sign of spread as yet). I've made big changes to my diet, lots of organic veg, green tea etc, started meditation and accupuncture to reduce stress, now I'm looking for suitable forms of exercise as I've heard this is particularly important for those with TNBC. All I do is walking at the moment but I guess it's a start!


Edited by gardenbeetle - Oct 10 2009 at 7:46am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 10 2009 at 8:15am
Dear gardenbeetle,
 
Lori used visual imagery through her treatments, and still does, and she also has a dvd called Body Wisdom, which has helped tremendously. Lori had conventional treatments, but has said that if this beast comes back she will never do chemo again. She experienced what it did to her body.
 
Walking is great, and not only does it help physically, but Lori says it is a stress buster, it clears her mind. Lori runs, hikes or bikes every day and had done so for almost 27 years now. Winter is a bummer here in PA, as it does cut down on the days in the fresh air. Well, I guess that is questionable considering all the toxins in the air!Big%20smile Oh and they have sprayed for the gypsy moths for many years here, and directly in the area where Lori lives.
 
Lori's diet is just like yours, and she also buys only grass fed beef and free range poultry. May I ask what supplements/vitamins you are taking also? Lori takes calcium, D3, Magnesium, Selenium, CoQ10, Omega 3, green tea, and many other teas, and I keep forgetting what elseBig%20smile She has eliminated all sugar/processed foods. It is the glucose which feeds the cancer cells, so anything you can do to reduce that is beneficial. Lori uses agave for her sweetener, and uses spelt flour to bake her bread.
 
I would recommend a book, Anticancer, a New Way of life by David Servan-Schreiber. Lori bought it and then I had to get it. That is what initiated her research as to how cancer grows. This man had brain cancer twice and has beaten it. He did have chemo, but then began researching for foods and supplements which would help.
 
She is also on biodentical hormone replacement therapy since June, and is feeling sooo great.
 
So good to meet you and my granddaughter is a lover of all insects also! She collected and fed them when she was a little girl.Smile
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Hi again Nancy, thanks for all the info. I am very afraid of chemo. I watched my Dad suffer through it before he died of lung cancer. Seemed to just prolong the pain - I remember him begging my mum for a gun. I would risk it if the success rate was higher, e.g. if I had leukemia, but unfortunately for breast cancer it seems it's just not that effective.

Re supplements, I only take a multivitamin, selenium and spirulina at the moment, but not every day. I am looking for a nutritionist in my area before I splash out on anything else, as I'm not sure of the ideal quantities and don't want to overdose - especially not while still having radiotherapy. But I figured I couldn't go wrong with an organic, plant-based diet - and green tea was recommended by even my conventional docs (including a top breast surgeon) as well as just about everywhere else!

I have read David Servan-Schreiber's book, it was so inspiring, I've been posting links to it on every forum thread I've used! I'm now reading his 'Healing without Freud or Prozac' which is also really interesting. I also read  about visualisation, which I try to do sometimes!

Insects always fascinated me, so tiny yet so complex and beautiful.

Hope you and Lori are doing well,
GB


Edited by gardenbeetle - Oct 10 2009 at 10:19am
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gardenbeetle,
 
I too recognize you from another site .   Glad you are able to join us Smile
 
This category is new for us here on TNBC site which is why we always had to go to the "other" site to post freely.   Many that do'nt choose alternative tx have much discrepancy as to what we are doing.  I agree with you on the chemothreapy issue.  If you find any great options for health/vitamins/etc please clue us in?
 
Again, welcome! 
 
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 10 2009 at 1:50pm
gardenbeetle,
 
I hear what you are saying as to your Dad. My friend Bev watched both her parents be dx with cancer, both aunts, a child 12 years old of the one aunt, and they all had chemo and she took care of everyone of them, and she says over and over that it was the chemo that killed them, not the cancer. That is why she refused chemo.
 
Bev had a double mastectomy, no reconstruction,  but no other treatment. She has the same diet as you and Lori now, and is doing everything in her power to prevent this monster from returning, just as all those taking chemo. She is quite knowledgeable as to supplements/vitamins/teas and much more.
 
Oh, and this spring and summer Bev put up a greenhouse, grew all her flowers and veggies, planted them, took down the greenhouse, built a beautiful patio and pond, and walkway, (lifting stones weighing 60 pounds), painted her kitchen cupboards, raised 10 Rhode Island Reds from baby chicks, built a coop for them, took care of her 2 horses, and a pony, and gardenbeetle, there were days when I was tired just listening to her tell me what she had done that day.LOL She is now getting about 12 eggs every two days, and they are her eggs, organic eggs.
 
You are wise to seek a nutritionist as then you will be getting everything you need to maintain your health.  Just be cautious as Lori went to one here, not even a week after she was dx, and the woman did not really help her, and Lori spent over a thousand dollars. Lori was terrified out of her mind, did not want to take chemo, and I believe this woman took full advantage of her.
 
Our grandson was dx with leukemia at age 3, in 1991, and he is now 21 and at the Art Institute in Pittsburgh, and is doing well. I have read numerous articles as to chemo and the success rate for leukemia and I believe another type of cancer, and my grandson is living proof of that. Success rates with chemo are high with a dx of leukemia.
 
Odd though, he had the same chemo drugs as the women dx with bc, and of course TNBC.
 
Servan-Shreiber was the inspiration and starting point for Lori to find ways to heal her body after chemo. Lori teaches second grade but is a nurse. She has not practiced for years, but the nurse in her kicked in after all her treatments, and she was determined to go back to her nursing education, and research exactly how the body functions.
 
I will now have to get his book 'Healing without Freud or Prozac'. Many of the women here have read his anticancer book and are following the diet, and some while taking chemo. They did quite well, and had less problems.
 
I am so glad you have joined us, and I hope that others from the other site will follow. We don't want to "steal you away", we just want your friendship and support here also. I would imagine there are literally thousands of women refusing treatments, and they have no place to turn for support.
 
Ok...long winded as usual...Big%20smile..you will get used to itLOL
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2009 at 8:25am
I am new to this forum and newly diagnosed with stage 2 possibly 3 after 1 more biopsy. 

I am currently on high Vit C, D3, Selenium, Magnesium, Kyolic Garlic, weekly intravenous multi vitamin mineral support, homeopathic and herbal remedies, bioidentical support and seeking other options.

I have yet to start any chemo, radiation or surgery.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2009 at 9:41am
Dear maryjahn,
 
Welcome, and it looks as though you are doing much more than most women just newly diagnosed. What led you to these types of support...the weekly intravenous, and the rest?
 
May I ask exactly what biodentical support you are receiving? My daughter Lori who was dx in June of 2007, did have chemo and rads, and a mastectomy, but now is taking biodentical hormone replacement therapy. She goes to an antiaging specialist in Pittsburgh, and has also done extensive research on this field of medicine. The chemo really affected her immune system, and hormone levels, and she just wanted her life back.  
 
I am not the one dx with breast cancer, and I will not try to sway your decision on any treatments. I will tell you that you should gather all the information that you can before making any decisions. This is your body...your life.
 
I know women who have refused all treatments with the exception of surgery and are doing well, and then there are those who have done chemo and rads and are also doing well. It is a very difficult decision, and you have to be at peace with yourself when you make these decisions.
 
Here on the site you will find a ton of information as to TNBC and all the chemo treatments/regimens that other women are taking. Please take a look at all that is available.
 
On the breastcancer.org site there are women refusing treatments, and one is 22 years out, but did have a recurrence, and still refused chemo. Others are just beginning this journey and are refusing chemo.
 
I asked for this Alternative treatment forum so that women could speak with others who are undecided, or who have refused treatments, without feeling intimidated, and still have the opportunity to speak with those who have chosen conventional treatments.
 
Here on the site we have Rena, who is 22 years out and took chemo every week for a year, and Flutist, who I think is 18 years out and took chemo every week for a year also. There is another woman who is 16 years out, but I cannot remember her name. They are doing well also.
 
JuneLee is 4 years out from dx and her onc told her she did not have to take chemo, and sparrow refused chemo and is doing well, but I cannot remember when she was dx. Sara..user name outnumbered was told she did not have to take chemo, but became very concerned when she read that almost all the other TNBC women had treatments, and consulted with more doctors and still was told no. Sara did have surgery a second time to remove her nipples per the doctors recommendation.
 
You do have time to make your decision, and it does not have to be tomorrow or even a week from now. No matter what your decision...surgery or no surgery..chemo or no chemo...rads or no rads, I will support you and so will others. If you want links for articles as to conventional or alternative treatments please just let me know.
 
Many hugs, and my heart goes out to you,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2009 at 4:21pm
I have always done some sort of alternative treatment.  I was referred to an integrative dr by a friend who's specialty is bioidenticals, thyroid, adrenals and cancer.  I was  wiped out, barely functioning, had no insurance and didn't know what was wrong with me.
 
I started with my dr in May.  He immediately diagnosed me with adrenal exhaustion and strated treating me.  His treatments were helping but I knew something else was wrong.  6 wks ago had blood test which came back clear and an ultrasound on my  thyroid--I was in a car accident 3 1/2 yrs ago with sever injuries to my neck.  The day of my ultrasound for my neck (nodes, no cancer)I discovered a lump in my breast.  The day of the biopsy I found another lump in the same breast.
 
My dr is interviewed in Suzzane Summer's new book and he emailed me a copy of this interview which gave a list of how he approaches cancer and the treatments he recommends.  I started the intravenous right away.  I also followed the breastcancerchoices.org site using the Iodoral and the other supplements.
 
I have just added Wobenzymes 5 tablets 3 x day on an empty stomach.
 
I am having surgery.  My doctor said if my lymph nodes are cancer free I won't need chemo.  If they aren't, then he is going to do another intravenous treatment to counter the chemo's effects (mistleto from germany) plus colon cleanse.
 
Trying to do many other things:  lots of asparagus for interferon, vegan diet, Olefra 21 day detox,  a friend recommends a complete body detox, epsom salt & baking soda baths and coffee enemas.  Just trying to build up my strength.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2009 at 5:25pm
Dear maryjahn,
 
I have read The Sexy Years,  Ageless and Breakthrough books, and both Lori and I were very impressed with the interviews with all the doctors. When Lori was tested, which was before she got the biodenticals, her antiaging doctor in Pittsburgh said that her DHEA and Cortisol levels were the highest they had seen in over 3000 patients. She was headed for adrenal burnout. Her immune system was compromised, and she too was wiped out.
 
Of course she had been through a screwed up lumpectomy, a mastectomy, 6 chemo treatments of ACT and 28 rads and reconstruction. She and I both look back to even before she was dx, and know that her stress level was through the roof.
 
After reading on the immune system and hormones, I have learned that just what you said was happening to you, can lead to cancer and many other diseases. May I ask how you are feeling now? I think it is great that you are going to have the Iscador even if you do have chemo, and in Germany they give Iscador after the chemo. My daughter Lori was suggesting that a friend of mine see if she can get the Iscador, as she stopped all treatments.
 
So, this doctor you are seeing now is willing to work with you even though you may need chemo? Or is this the doctor who will be caring for you no matter which treatments you decide on?
 
Ronda, a member from here on the site did a colon cleanse and I believe something else before she had chemo, and then after chemo to detoxify. My friend Bev has done them , and she says that when people take antibiotics they should then take probiotics to get the system back to normal. I read that in the books by Somers also.
 
I would love to know your doctor's name, so that I can look it up in the book. I think the other bc site you mentioned is one a member sent to me.
 
It is quite apparent that you know much about alternative treatments, and are using them to your advantage. This is what Ronda did when she was dx. She also took D3, and many many supplements all through her treatments. The oncologists tell all the women that they cannot take anything for it may interfere with the chemo. Ronda said that you just don't take it the day before, day of and for 2 days after chemo. Sounds about right to me considering that the chemo/chemicals are out of you body within 48-72 hours.
 
Thank you very much maryjahn, for taking the time to reply to me. It is fascinating and just wonderful to learn of so many different treatments. Oh...do you have a thyroid problem also? Lori does and is on a biodentical for that also.
 
Please keep posting.. Wink
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2009 at 8:20pm
Dr. Galitzer in Santa Monica will work with me no matter what I decide but I trust his judgement, and if he says I don't need chemo, then I won' t have it--same for radiation.  He also sent me to his friend an oncologist who is more open to integrative healing.
 
You just have to request Iscador from your doctor and it can be ordered.
 
There is a new Suzzanne Sommers book on cancer coming out next Tues and she will be on Larry King live with a panel of dr's on th 19th I believe.  She's taking on the whole medical bureauocracy.  I read 7 chapters at the drs office today.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Oct 13 2009 at 8:38pm
Dear maryjahn,
 
Here I am at 1:23 am on the East coast, and looking at the Breakthrough book. I did not get to your doctor's interview yet. It is on page 319Big%20smile There is an onc who is open to integrative healing? There are not too many and you know that!! As I said, they will not even approve supplements/vitamins...nothing.
 
So, this friend of mine can just order the Iscador from a doctor practicing in conventional medicine? It doesn't have to be an antiaging specialist like Lori goes to?
 
What is the new book by Somers? I didn't hear about it. Fantastic mary.!!! And she's taking on the whole medical bureauocracy? I will have to look online for the name of the book. If these doctors in conventional medicine don't soon wake up and start treating the patient...the person, they will see many just leave and find an antiaging specialist who will treat them, and get to the root of their problems. My daughter Lori finally has her life back, and it is due to biodentical hormone replacement therapy.
 
Thank you my dear! I just Googled and cannot find a new book by her. Unhappy
What is the name?
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Oct 15 2009 at 5:46pm
Has anyone heard of, researched and/or tried any Chi Massagers? Are they really helpful? Any comments - good bad or ugly - would be useful.

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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