TNBC Foundation Forum http://forum.tnbcfoundation.org/ This is an XML content feed of; TNBC Foundation Forum : Last 10 Posts Mon, 06 Sep 2010 01:15:07 +0000 Sun, 05 Sep 2010 23:57:58 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 9.63 30 forum.tnbcfoundation.org/RSS_topic_feed.asp TNBC Foundation Forum http://forum.tnbcfoundation.org/forum_images/forum-logo-over.gif http://forum.tnbcfoundation.org/ Support Groups : MEMBERS IN YOUR AREA...Are they close? http://forum.tnbcfoundation.org/forum_posts.asp?TID=5627&PID=63690#63690 Author: Scott
Subject: MEMBERS IN YOUR AREA...Are they close?
Posted: 05 Sep 2010 at 11:57pm

Hi Carol, my beautiful bride & I can fly to Nashville in an hour or so. Count us in....you are such a blessing on the spiritual support thread, God is truely working thru you for the people on this site.
 
Scott
]]> Sun, 05 Sep 2010 23:57:58 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=5627&PID=63690#63690 Welcome New Members : Experience with 2nd cancer in same breast? http://forum.tnbcfoundation.org/forum_posts.asp?TID=7072&PID=63689#63689 Author: TNBC_in_NS
Subject: Experience with 2nd cancer in same breast?
Posted: 05 Sep 2010 at 11:54pm

Welcome Vivian! Although I am sorry you have to be here..Cry
 
You will find that the information this site sends around to everyone is awesome!  There are many years of first hand knowledge available to us all, so use each one's experience and build a good plan for yourself with your physician......
 
If you post in Recurrences more will see your posts and therefore get more responses.....
(just a thought)Embarrassed
 
I am 16 months out of surgery and had cyclophosphamide and Taxotere x 4 and 32 radiations.  I am having a mammogram and ultrasound done on Sept 21st to check out a new lump in the same breast, so hoping it is scar tissue.  Taxanes are really potent with TN so for sure use them with something else. 
 
Steve knows just about every doc there is for TN so his suggestions are great!  Denise has been here and back and is a super source of chemo and remedies.  Each one has their specialties and bring so much to this table of TNBC... We have numerous new members and some that have been here since inception.  Everyone just has so much to offer. 
 
We do have a spiritual  forum as well where we can pray together, do readings, vent, etc.  Carol is our spiritual guide she posts daily readings, thoughts and prayer. One of our seasoned members began a forum for Jewish prayer also if you desire.
 
Vivian have you been tested for the BRCA 1 & 2?  I did not see your age now and at first diagnosis? 
 
To add your information that shows at the bottom of each post, go to Control Panel, click on signature and edit to enter information.  That way you don't have to type it in each time you post. 
 
Again, Welcome and I am so sorry you are dealing with this again, but know you are in the best of company.  Your sister on a new journey, Helen in NS
]]> Sun, 05 Sep 2010 23:54:03 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=7072&PID=63689#63689 TNBC Talk : prophylactic removal nonaffected breast and ova http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63688#63688 Author: 123Donna
Subject: prophylactic removal nonaffected breast and ova
Posted: 05 Sep 2010 at 11:33pm

Lee,

I was 49 at dx, and asked for the BRCA test. The counselor asked about family history and no cancer at all. However I was the only grandchild on my dad's side so I had no history there. I was able to get insurance to cover the test. I felt better even with being negative. If I wasn't, then my sons lives could be effected and I wanted them to know.

The test should be available to everyone and not cost prohibitive.

Donna]]> Sun, 05 Sep 2010 23:33:38 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63688#63688 TNBC Talk : cg--- http://forum.tnbcfoundation.org/forum_posts.asp?TID=5810&PID=63687#63687 Author: 123Donna
Subject: cg---
Posted: 05 Sep 2010 at 11:25pm

Connie,

We are here with open arms whenever you want to come back. We miss you!]]> Sun, 05 Sep 2010 23:25:24 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=5810&PID=63687#63687 TNBC Talk : prophylactic removal nonaffected breast and ova http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63686#63686 Author: 123Donna
Subject: prophylactic removal nonaffected breast and ova
Posted: 05 Sep 2010 at 11:21pm

KC,

Thanks for the explanation. Such a hard decision at your age and newly married.

I know if there was a test several years that could have told me I was at high risk for bc, I would have chosen a prophylactic mastectomy. Maybe then I wouldn't have had to face tnbc and chemo. Maybe someday women will have this screening.

Donna]]> Sun, 05 Sep 2010 23:21:51 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63686#63686 TNBC Talk : prophylactic removal nonaffected breast and ova http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63685#63685 Author: steve
Subject: prophylactic removal nonaffected breast and ova
Posted: 05 Sep 2010 at 11:21pm

Dear Lee,

what about family history on your dad’s side of the family?…I don’t have cancer(that I know of) and I passed the BRCA mutation to my daughter…

I was in a eminent scientist’s office many years ago and she pointed to theeraser tip on a pencil and asked me “how long do you think it takes cancer togrow to that size?”..I guessed 3 months and was told it could be 7-10 years andoften it is hidden as DCIS…

so who knows when the cancer started when a woman, at age 50, is dx with breast cancer…the cancer doesn’tcome with a sticker on it…born in 2004..but it may have been…and a mammogrammay have missed it..I understand your oncologist’s logic, and he most probably is correct, but in my opinionthere is no certainty to his statement. The only way to know for sure is totest and if your insurance will pay for it..why not do it? Especially with TNBC since 80% of BRCA1+ women who have breast cancer have TNBC. The converse is not true, however; 80% of women with TNBC are not BRCA+. Knowledge about the BRCA mutation is importantinformation for you and your family.

Lee, if your Kaiser oncologist recommends another oncologist outside the systemthey will pay for it, at times…they don’t advertise that but they will pay forit at times. I just went through that exact situation with someone I amhelping. The key words are at times.

Dear k.c.,

good luck with your scan..and thanks for sharing your story.

I wish there were other things available to BRCA+ women to reduce their risks.My BRCA1+ daughter did the same surgeries.

all the best,

Steve

]]> Sun, 05 Sep 2010 23:21:07 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63685#63685 TNBC Talk : cg--- http://forum.tnbcfoundation.org/forum_posts.asp?TID=5810&PID=63684#63684 Author: TNBC_in_NS
Subject: cg---
Posted: 05 Sep 2010 at 11:09pm

Yes Connie, we have not stopped praying and thinking about you girlfriend!
Hope you are doing well and that the summer has been kind to you...
HUGS, Helen in NS
]]> Sun, 05 Sep 2010 23:09:30 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=5810&PID=63684#63684 TNBC Metastasis/Recurrence Users : Recurrence and Referrals http://forum.tnbcfoundation.org/forum_posts.asp?TID=7060&PID=63683#63683 Author: steve
Subject: Recurrence and Referrals
Posted: 05 Sep 2010 at 10:57pm

Dear artlab,

I agree lbbc.org is a great site..The brochure you spoke about was a joint venture between lbbc.org and TNBC Foundation 

here is link for the brochure from our site..

http://www.tnbcfoundation.org/tnbcbrochure.htm

I believe that TNBC Foundation is more focused on triple-negative-breast-cancer than any other site.
Having said that, lbbc and TNBCF seem to have a very nice working relationship and that is helpful for the folks here.

all the best,

Steve


]]> Sun, 05 Sep 2010 22:57:14 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=7060&PID=63683#63683 TNBC Talk : Welcome From TNBC Foundation http://forum.tnbcfoundation.org/forum_posts.asp?TID=8&PID=63682#63682 Author: Judior
Subject: Welcome From TNBC Foundation
Posted: 05 Sep 2010 at 10:54pm

Hi Jan. I like your picture! It's not the easy too do!!!! Clap!Like You I could not believe I did it. Judy]]> Sun, 05 Sep 2010 22:54:01 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=8&PID=63682#63682 TNBC Talk : prophylactic removal nonaffected breast and ova http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63681#63681 Author: k.c.
Subject: prophylactic removal nonaffected breast and ova
Posted: 05 Sep 2010 at 10:49pm

Oh yeah, gotta <3 my forgetfulness sometimes! Yes, I am BRCA 1 + and based on that I will be having preventative oophorectomy in December.. unless the scan shows i need to do something different. At the age of 32 and just married in December '09 its a scary step but...honestly want to do anything preventative that i can at this point.
]]> Sun, 05 Sep 2010 22:49:26 +0000 http://forum.tnbcfoundation.org/forum_posts.asp?TID=7045&PID=63681#63681