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4 years with mets and counting!

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    Posted: May 16 2013 at 5:06pm
Hello,
 
I just got my scan results today and I continue to have regression on Navelbine.  I have been on this chemo for 21 months now.  I was expecting to gets results of stable or even slight progression, but I am thrilled with this wonderful news!!!!
 
Lotusblossom
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suds Quote  Post ReplyReply Direct Link To This Post Posted: May 16 2013 at 5:34pm
This is such wonderful news!  Gives hope to all of us! I hope and pray for this regression to last a long, long time.
-Suds
1/2012: 2cm mass, 1/16 nodes
4 AC, 4 T, mastectomy, 6.5 wks radiation
Negative CT scan after chemo
3/2013: mets to nodes, brain, lung, early bone
4/2013: Neurosurgery + SRS
4/2013: Gem/Carbo started
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Gabj Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2013 at 1:17am
This is wonderful news. May Navelbine work for many more.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote btstark2003 Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2013 at 4:24am
Lotusblossom,
Wow! So inspiring. How do you feel? What else do you do to defeat the cancer, like with your diet, exercise and supplements. It sure seems to be working!
Beth
2008 Stg1 TNBC, LX, FEC+T, rads
2010 2.5cm tumor BRCA-, BMX,CMF
2011 LN mets, Gem/Carbo, surgery, rads
2012 lung mets, PI3Ki/taxo
2013 anti-PD-1
2014/15 Xeloda, IMMU-132, eribulin
Aug 2015 Keytruda
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2013 at 8:16am
Lotusblossum,

Congrats on the good news!  

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote snickers Quote  Post ReplyReply Direct Link To This Post Posted: May 17 2013 at 9:48am
Lotus
Congratulations!! What kind of mets do you have? I had mets to liver and lungs and have been NED for about 7 months now. Still on Gemzar
DX 10/31/11
6/13 lung/liver mets
9/13 NED lungs,liver met part.rem
5/4/13 NED lungs&liver
11/5/13 NED lungs..liver mets back
LOTS LVR METS had y90 liver trtmt mets contrld
1/3/14 num brain mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lotusblossom Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2013 at 7:19pm
Hi all,

Just thought I would update you all. I have now been on Navelbine for 27 months and continue to have good results. I have had mets for 4 1/2 years now and continue to have a very good quality of life.

I wish you all the vey best for the holiday season!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2013 at 7:27pm
lotusblossum,

That is great, no excellent, news!  Thanks for sharing it with us!!

Hugs,
Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Adnerb Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2013 at 10:38pm
Snickers and Lotusblossom,
Good news for both of you!
Hugs,
Brenda
'05 Stg1 TNBC Lump, SNB, A/C, 33 rads
'09 Stg2 ER-, PR+, Her2-, Bil.Mast., T/C, Arimidex.
'13 Stg4 Lung mets, ER+, PR-, Her2-, Carbo/Gemzar, Letrozole.
'14 Abraxane in July
'15 Abraxane in March
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Post Options Post Options   Thanks (0) Thanks(0)   Quote simplelife4real Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2013 at 6:08am
LotusBlossom, thank you for sharing how well you have been doing.  That is awesome and gives hope to me and others.
DX Aug 2013 @ age 60, Stage 2b, grade 3, 2.3 Cm, node positive, BRCA-; neoadjuvant taxolx12 and ACx4:
2/13/14 LX and ALND-2mm residual in 2 nodes
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Post Options Post Options   Thanks (0) Thanks(0)   Quote hopeful57 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2013 at 9:35am
That news gives all of us hope. Thank you for sharing. May you and yours have a blessed holiday.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MothersDaughterTNBC Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2013 at 10:10pm
Woo hoo Lotusblossom! So glad to hear the good news!!
Mom's Diagnosis:
07/2013 - TNBC with lymph nodes and liver involvement
07/2013 - Adriamycin & Cytoxan
09/2013 - Doxil

https://www.facebook.com/PrayForJanice
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2013 at 10:32pm
Dear Lotusblossom,
 
How wonderful to hear your excellent news.  I am sure you have given many ladies hope, courage, and peace that no amount of money could buy.
 
Bless you,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2015-9 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lotusblossom Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 8:51am
Hi All,

Just a quick note to update you. I have been on Navelbine for 30 months. This is my fifth line of chemo since diagnosis at stage IV in June 2009. At that time, I had mets in lungs, biliary tract, spleen, hilar nodes, mediastinal nodes, axilla nodes and bones. I found out this week that all that remains is 1 nodule in the lungs, measuring 1 mm. Apparently, I am considered in remission, although I thought you had to be NED for that.

I was diagnosed stage IV at age 45. I am turning 50 next week.

Never give up hope.

Lotusblossom


Edited by lotusblossom - Feb 14 2014 at 8:51am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sabinecalifornia Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 9:56am
So very happy for you. Keep on fighting. Never give up!

Happy Valentines Day for you

Sabine
DX TNBC 7/11 @ age 50, Stage 2A Grade 3, 1/19, LE/AD 8/11, BRCA1/2 neg.,
4 A/C, 10 Taxol, 2 Abraxane due to allerg. react. to Taxol, fin 3/12. 33 Rads 6/12. NED CT 8/12, 10/13, 10/14
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Gretchen Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 10:10am
Lotus, you said that navelbine was the 5th chemo you tried...what were the first 4? 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 10:43am
Lotusblossom, my grandmother had Mets in the bone for 21 years :) she was a legend at MD Anderson! You, like she, are an inspiration! Happy Valentine's Day!
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 10:52am
Lotusblossom,

Wonderful news!  Thank you for sharing.  I'm so happy for you - you've achieved remission and turning 50!  You give us all hope.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 11:35am
Dear Lotusblossom,
 
Continue the fight and keep inspiring others with this wonderful news. 
 
God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2015-9 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Loveforlife Quote  Post ReplyReply Direct Link To This Post Posted: Feb 14 2014 at 12:47pm
Lotus,
Thanks for the update. It gives me hope! Happy Valentine's day to you.

Laura
Dx 1/2011 2b, Gr 3, TNBC, AC/T chemo, L lumpectomy/re-excision/lymph node diss/rads. DX DCIS R Breast 4/2012 - Lumpectomy/Rads.
DX Lung Spine mets 5/2013 Carbo/Gemzar 10/2013 Xeloda 1/2014 Ixempra
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